The Journal of Mind and Behaviour Summer
and Autumn 1990. Volume 11, Numbers 3 and 4 Pages 385 [139] - 406 [160]
The Name Game: Toward a Sociology of
Diagnosis
Phil Brown
Brown University and Harvard Medical
School
Abstract
Although diagnosis is integral to the theory and
practice of psychiatry, social scientists have not developed a comprehensive
approach to diagnosis. This paper presents a preliminary outline of the issues
which a sociology of diagnosis should integrate. These include bias and social
control in psychiatric diagnosis, diagnosis as part of a new extension of the
biopsychiatric medical model, and flaws in contemporary diagnostic
categorization. These issues are then viewed in terms of professional practice
styles, diagnostic biases, psychiatry's professional dominance over the mental
health field, and psychiatric hegemony over the clinical interaction with
patients.
Introduction
Diagnosis is integral to the theory and practice of
psychiatry, yet it is loosely studied by social scientists. In this paper I
layout what I consider to be the main areas which a sociology of diagnosis
should examine. The field is still new, and not all the components are
well-developed. Some are more well-developed than others, for instance sex,
race, and class bias, though they are not usually integrated with each other or
with the other major areas of concern. There is also a small tradition of
examining diagnosis in clinical interaction as a social construction. But we
have not seen adequate attention to conceptual models which integrate medical
sociology and sociology of science in order to understand the pivotal position
which diagnosis plays in the larger professional project of biopsychiatry.
Although much of the recent attention to diagnostic issues specifically
addresses the DSM-III-R bio-psychiatric project, it does not pay attention to
other diagnostic currents. In this paper I discuss diagnosis historically,
epistemologically, and sociologically, working to make links between the often
disconnected components of the sociology of diagnosis.
Below I shall present an outline for a sociology of
diagnosis. I view this as both an approach to the study of diagnosis, as well
as an overall critique of modern psychiatry. The critical approach to
psychiatry seen in the 1960s and 1970s has been fairly dissipated, owing to the
general conservative trend in society, the success of organized psychiatry in
promoting its new face, and the abandonment by many social scientists of their
interest in this area. There are, however, signs of a renewal of interest in a
critical perspective, stemming in large part from an interest in critiquing the
new diagnostic project of psychiatry - a project blind to the entire past
history of that profession.
In exploring the potential for a rich subject matter
in the sociology of diagnosis, I can only mention briefly some of the key work
already done. Many components of a sociology of diagnosis already exist in
varying degrees of development. The task is to solidify those that are least developed,
and to synthesize all the components into a new focus. Although I am concerned
here with psychiatric diagnosis, I think that many of the issues can be
extended to medical diagnosis. Indeed, a considerable body of work in medical
sociology is concerned with lay-professional differences in disease and illness
conception and experience, and with the social construction of disease (c.f.
Freidson, 1,970; Schneider and Conrad, 1983). That research directly touches on
diagnostic issues, although they are not usually considered specifically as
such.
I begin by discussing some historical examples of
bias and social control in psychiatric diagnosis. I then situate current
concern with diagnosis in the context of a new extension of the biopsychiatric
medical model. That leads to a discussion of flaws in the theory and
measurement of contemporary diagnostic categorization. These issues are then
situated in specific phenomena of professional practice styles and their social
biases. Following that, I examine psychiatry's professional dominance over the
mental health field and its control over the clinical interaction with
patients. Last, I take up the social gatekeeping functions of diagnosis by
looking at diagnosis as an arena of struggle, and at the ahistorical nature of
psychiatric diagnosis.
The Vagaries of Psychiatric Diagnosis
Benjamin Rush, a signer of the Declaration of the
Independence and Physician General of the Continental Army, is considered the
"founder" of American psychiatry. His cameo appears as a logo on the
American Psychiatric Association's publications. In the period immediately
following the American Revolution, Rush named an interesting diagnosis called
"anarchia" (Szasz, 1970, pp. 138-149). Anarchia was the "form of
insanity" in which people were unhappy with the new political structure of
the United States (there were problems, such as black slavery and the
restriction of the vote to white men who held landed property), and sought a
more democratic society. Rather than deal with these opponents on their own
political terms, Rush found it easier to transform their opinions into the
symptoms of a mental disease.
Rush was also an innovator in treatment. He
developed the "tranquilliser," a chair which held patients immobile
by straps on their limbs and a cage over their head. He originated the
"gyrator," a rotating board to which patients were strapped and then
spun at high speeds. And when a patient presented the delusion of feeling
fragile like glass, Rush figured out that the best thing to do was to pull a
chair out from under them and then to show them glass pieces in order to
demonstrate the wrongness of their belief (Szasz, 1970, pp. 138-149).
Evidently, there was some connection between Rush's social control ideology of
diagnosis and his social control practice of treatment.
Rush's psychologisation via diagnosis was by no
means new. The Catholic Church had a long medieval history of
"diagnosing" nonconforming women as witches who were possessed by the
devil and his legions. This was a complementary phenomenon to the then current
religious/ demoniacal perspective on social deviance. Indeed, a central element
of Szasz' (1970) critique of institutional psychiatry is the latter's
functional resemblance to the Inquisition. The Catholic Church's persecution
for what it identified as deviance was torture and murder. There was a clear
connection between labelling and social control practices: the purpose of both
was to ensure fear, division, and supernaturalism in the working population, in
order to maintain the feudal solidarity of exploiting nobles and authoritarian
clergy.
In 1843 Dr. Samuel Cartwright identified the disease
of "drapetomania," which occurred only in black slaves and which
resulted in a curious form of pathology - the victims had a compulsion to run
away. Blacks also were the only people to contract "dyaesthesia
Aethiopica," which caused such pathology as "pay[ing] no attention to
property" (Thomas and Sillen, 1972, p. 2). The function of these
diagnostic practices was to provide support for a social order based on
slavery.
In the early 20th century, psychiatrists developed a
new use for the diagnosis of "psychopathic." Originally used to label
a variety of male deviants such as vagabonds, criminals, and revolutionaries,
the diagnosis was used by Progressive Era psychiatrists to label sexually
active women. Lunbeck (1987) provides a fascinating account from her research
in the archives of the Boston Psychopathic Hospital covering the years
1912-1921. Typically, women committed to the hospital for "hypersexual
behaviour" were working class women living on their own who had chosen to
forego or delay marriage, or who were widowed or divorced. Psychiatry's
response to the new sexual morality of the time was to target it as a mental
disease. Sexual freedom was but one manifestation of these new women's autonomy
in the world of work, pleasure, and social and familial relations. However, the
women were out of character with traditional norms, and (male) psychiatrists
could only see them as having a mental disease.
Psychiatrists classified sexually active women along
with prostitutes, blaming them equally for enticing men into illicit sex; this
diagnosis let men off the hook. The psychiatrists found further evidence of
derangement in that "immoral" women would not accept money for sex.
The doctors followed the general social values that proclaimed sex as a
commodity: a moral woman saved her virtue as her best asset; an immoral one
could only give it up for pay - otherwise she was crazy. Psychiatrists had
earlier tried out the diagnosis of "feeblemindedness," but the
patients scored too high on IQ tests. Some were intelligent enough to openly
debate with their caretakers the sexual double standard. Hospital psychiatrists
in turn warned them not to read or discuss those other social issues, since
education was bad for women (Lunbeck, 1987). (1)
In the turbulent 1960s, Bettelheim (1969) told the
United States Congress of his findings: student antiwar protesters who charged
the University of Chicago with complicity in the war machine had no serious
political agenda; they were acting out an unresolved Oedipal conflict by
attacking the university as a surrogate father. Bettelheim's appellation worked
well to pathologise essentially rational political protest.
The Logic of A Sociology of Diagnosis
The few examples above are manifestations of the
application of psychiatry for social control, and from our current vantage
point they seem very crude. I emphasize them, however, precisely because in
their own time they were part of very ordinary worldviews. There are certainly
other forms of social control, especially today, which are far less overt.
Indeed, critiques of the "psy complex" (Castel, Castel, and Lovell,
1982) argue that it involves social control at very routine levels of
socialization, labelling of behaviour, and prescriptions for
medical/psychiatric intervention.
The entire history of the sociological study of
mental health, as well as the tradition of radical critiques of the mental
health field, have revolved around this common theme of psychiatry's role in
social control. What has not always been clear is that diagnosis has been a
central component of this social control. Giving the name has been the starting
point for social labellers. The power to give the name has been a core element
in the social control nature of the mental health professionals and
institutions.
In one sense the critique of diagnosis is the
critique of psychiatry, because diagnosis is the language of psychiatry, which
by extension defines the practice of psychiatry. Diagnosis locates the
parameters of normality and abnormality, demarcates the professional and
institutional boundaries of the mental health system, and authorizes psychiatry
to label and deal with people on behalf of society at large (or, more
appropriately, certain sectors of society). It is the legal basis for provision
of benefits, and often for involuntary commitment. (2) Especially in the guise
of DSM-III-R (American Psychiatric Association, 1987), psychiatric diagnosis is
the social representation of psychiatric knowledge, as well as the psychiatric
profession's presentation of self. Diagnosis, Blaxter (1978) notes, is "a
museum of past and present concepts of the nature of disease" (p. 12).
Diagnosis thus cannot be studied on its own: it is
integral to the whole of psychiatry. We are compelled to question what I term
the diagnostic project of psychiatry in the context of the entirety of
psychiatric knowledge and practice. This means, in particular, putting it in
the context of all the errors and maltreatments of organized psychiatry - over
reliance on drugs, abusive treatment such as psychosurgery, conscious and
unconscious social control, replication and support of racism, sexism, and
class bias. Put simply, if modern diagnosis is the culmination of psychiatry -
which DSM-III proponents certainly claim it to be - then what are we to make of
the history of psychiatry leading up to this modem phenomenon? I think the
answer is that diagnosis reaps the sad legacy of the mental health system and
mental health professions.
This is not to be read as a simplistic ant
psychiatry which sees all mental health services as social control. Many people
and facilities sincerely strive to help patients. However, as I discuss below,
they do so mainly without reference to the official diagnostic framework, and
often enough do so with knowing or unknowing circumvention of and opposition to
official diagnosis (Brown, 1987).
Diagnosis and the Biomedical Model
The increasing faith in DSM (hereafter used in place
of the cumbersome DSM-III-R) is central to the new biopsychiatry. We are in a
period of "remedicalisation" of psychiatry. I say
"remedicalisation" because the prior medicalisation process was
challenged by attention to social factors and the role of the mental health
system in social change. The newer biopsychiatry has taken aim at the
proponents of a social context, offering an assortment of new work in molecular
biological studies of psychosis, with a new armamentarium of laboratory tests
and brain imaging. Apparently the proponents hope that such "hard"
data will legitimate their biopsychiatry more than have descriptive
neo-Kraepelinian categories and observations of the effects of psychoactive
drugs. But the new molecular biological approach only offers simple
correlations between biochemical states and accepted diagnostic categories.
Further, it accounts for only a small fraction of categories of the official
nosology.
Let me give an example of the attitude of this new
biopsychiatry. In 1987 I attended the founding conference of the Commonwealth
Research Centre, a major research centre funded by the Massachusetts Department
of Mental Health. Most invited speakers were fully locked into the molecular
biological levels of psychiatry, eager to show the biochemical bases of mental
illness. A small minority of speakers represented a social context, though
clearly from within the medical model. One was Bruce Dohrenwend, probably the
most respected psychiatric epidemiologist in the United States; he has worked
closely with many leaders of biopsychiatry, and has developed rating scales
widely used by biopsychiatrically-oriented people. The other was Courtney
Harding, a psychologist who has been a principal investigator of the Vermont
Longitudinal Study (Harding, Brooks, Ashikaga, Strauss, and Breier, 1987). This
is a remarkable study which shows that diagnosed schizophrenics have a higher
rate of recovery than previously expected, and that psychosocial rehabilitation
prior to discharge plays a major role in reducing future symptoms. Despite the
fact that both these respected scholars have always worked alongside
psychiatrists, and adhered to a medical model (albeit with a strong social
component), most conference speakers and participants sharply challenged them
for arguing that social factors were significant determinants of mental
illness. It was simply astounding - the biopsychiatrists went against the grain
of well-established research findings about social factors, and stridently
challenged these two speakers. There was no apparent need for it - the
biopsychiatrists already dominated the conference. Yet, clearly, they perceived
a need to demonstrate the worth of their perspective and to guard against
future usurpation of their dominance.
Organized biopsychiatry has embarked on what it
self-consciously styles a "neo-Kraepelinian" project. Quite
literally, its adherents seek a return to Emil Kraepelin because he was such a
remarkable labeller and classifier. They desire the neo-Kraepelinian model
because it is hyper-empirical, easily measurable and computable. This approach
states that it disregards aetiology and dismisses conflicting theoretical
standpoints (Andreasen, 1984; Blashfield, 1984). Early diagnostic schema of
physical illness were also accumulated without reference to aetiology, but when
etiological knowledge later accumulated, doctors typically tried to apply it.
We certainly do not expect doctors today to return to an atheoretical,
descriptive framework simply to avoid controversy. Yet this is what the current
diagnostic project in psychiatry is purportedly all about. Further, despite
their claims, the neo-Kraepelinians do not disregard aetiology so much as
history, whether personal or social. They would most likely be satisfied with
some form of genetic and biochemical aetiology, which is' in fact what they aim
for. The neo-Kraepelinians simply do not want to deal with any form of social
aetiology.
In addition, the growth of drug treatment as the
intervention of choice has cemented the centrality of diagnosis. Interest in
formal diagnosis was rekindled in the 1950s as a result of the introduction of
psychoactive drugs (Guimon, 1989). Since medication requires a match between
disease and treatment, exact diagnosis became increasingly important.
Unfortunately, the advent of widespread drug prescription often led to an
uncritical reliance on medication, while at the same time diminishing the
importance of social and institutional contexts in generating and maintaining
what we call mental disorders. In fact, unlike medicine where diagnosis
typically leads the doctor to prescribe a medication with known effect,
psychiatry often reverses this logic by making a diagnosis based on the
patient's response to medication.
The forefront of social psychiatry during World War
II and immediately after presented a vibrant criticism of biological
reductionist thinking. Jones (1953) and later Wing and Brown (1970) noted the
significance of "institutionalism" caused by hospitals rather than biological
processes. This did not imply that all symptoms were socially and
institutionally caused, but rather that many were. Sociological studies in the
1950s and 1960s heightened this awareness (Belknap, 1956; Caudill, 1958;
Goffman, 1961; Stanton and Schwartz, 1954). Community mental health approaches
grew up in this environment, leading to emphasis on non-institutional treatment
and to attention to social factors.
Pseudoscience
Such changes in orientation created disagreement
within psychiatry. As we know, all science is full of controversy, and claims
makers are always attempting to win colleagues and the rest of society to their
perspective. What becomes accepted as science is often the result of successful
social organizing and claims-making (Latour, 1987). In large part the
biopsychiatry project is a way of securing unity in a disunified profession.
The purpose of this unity is largely to secure professional dominance over the
mental health field, since psychology and social work have grown to be important
mental health disciplines in the last several decades. Unity within psychiatry
also solidifies the psychiatric claim that it is a "hard" medicine
worthy of third party reimbursement.
The leaders of the diagnostic project claim that
they are being atheoretical. While it is true that they are emphasizing symptom
clusters and avoiding traditional arguments, such as those between organic and
psychoanalytic perspectives, they cannot be atheoretical. As Faust and Miner
(1986) point out, even the most descriptive observations in psychiatry are
based on criteria of normality which are at bottom value judgements, e.g.,
"aggressive behaviour" by five year-olds, cut-off points for IQ
measurements of mental retardation. Faust and Miner, following recent work in
the social studies of science, argue that facts are largely defined by prior
theoretical or organizing constructs. To insist on only facts, in fact,
obstructs scientific development. Natural science, upon which psychiatry
unsuccessfully attempts to measure itself, typically hypothesizes abstract
concepts which go beyond observable entities. But there is no way to bracket
the prior organizing configuration. That configuration may just be very subtle,
even unnoticeable.
Everything is based on some theory, and the theory
in this case is a biopsychiatric one. The neo-Kraepelinians actually put forth
a claim to a neo-Kraepelinian theory, while at the same time denying the
existence of any theory. They thus put forth a theory in the guise of a
non-theory, and at the same time command others to avoid theoretical models.
The claim to be atheoretical is really a technical means to avoid a political
question, namely, who should have the power to define and implement psychiatric
knowledge and practice?
According to biopsychiatric nosologists, the symptom
clusters and categorical entities which form the basis for DSM-III and
DSM-III-R have been scientifically detected. Mirowsky and Ross (1989) describe
some fundamental problems in the diagnostic project. In the absence of
"gold standards" to prove disease (e.g., demonstrable lesions),
psychiatry uses concepts of latent biological classes as evidence for the
validity of its diagnostic system. As Mirowsky and Ross note, however,
"The problem is that the categorical biological state may not cause the
symptoms on which a diagnosis is based" (p. 16).
Factor analytic studies by DSM-III developers came
up with symptom clusters which do not correspond to DSM groupings, although DSM
diagnostic groups have distinct profiles of mean scores on the factors. This
can be understood in two ways. First, each diagnostic category can be seen as a
latent class, with still unknown pathophysiologic entities (this is the belief
of the DSM-III developers). Second, "We can regard the factors as
separable attributes of people and the diagnostic categories as subjective
constellations of those attributes" (Mirowsky and Ross, 1989, p. 17). Just
as stellar constellations are mythical creations of human perception, so too,
Mirowsky and Ross tell us, the diagnostic groupings are "mental overlays
grouping elements that seem to form something distinct, but which may have no
real connection with each other" (p. 17).
In addition to these conceptual errors, the
diagnostic project contains measurement flaws. By collapsing continuous metric
scales into categorical assessments, certainty is increased at the expense of
reliability. Mirowsky and Ross point out that if cut-points were used on
bathroom scales to categorize light and heavy, almost everyone would be
classified correctly, but without any reliability of measurement.
Psychiatry seeks to achieve predictive power in a
situation where certainty is low. This phenomenon is common to positivist
approaches to the social world - uncertainty is viewed as an interloper to be
overcome rather than as a basic feature which may provide problems that cannot
be surmounted. DSM proponents claim they have achieved a high degree of
inter-rater reliability (Klerman, 1983). A careful review by Kutchins and Kirk
(1986) of a number of field trials of DSM reliability, however, demonstrates
otherwise. Even using their own standard of good agreement on diagnosis
(Cohen's kappa ofo.7 or higher), DSM originators only reached that level on 31
kappas, while falling below that mark on 49. Further, no major diagnostic
category attained that level of agreement.
The psychiatric literature is full of DSM
reliability studies on countless numbers of diagnoses on all the axes. Yet
hardly any research addresses validity. Anyone can achieve inter-rater
reliability by teaching all people the "wrong" material, and getting
them to all agree on it. Chang and Bidder (1985, p. 202) put the problem this
way:
"At the current stage of psychiatric knowledge,
grouping patients according to selected properties rather than in terms of
their total phenomenology is analogous to classifying a car by observing any
four of the following eight properties: wheels, motors, headlights, radio,
seats, body, windshield wipers, and exhaust systems. While an object with four
of these properties might well be a car, it might also be an airplane, a
helicopter, a derrick, or a tunnel driller."
Put otherwise, witch trials showed a much higher
degree of inter-rater reliability than any DSM category (Kovel, 1988), yet we
would not impute any validity to those social diagnoses.
Validity requires that the variable or item be
highly correlated with a known measure, such as clinical diagnosis in medical
records. Biopsychiatry is satisfied to take as construct validity the fact that
DSM-III and DSM-III-R have been widely accepted by courts, prisons, third party
payers, and medical schools. Actually this is merely successful social
hegemony, yet the neo-Kraepelinains mistakenly take it as evidence of
scientific breakthrough (Kovel, 1988). Of course, from a social constructivist
approach to science, such successful social hegemony is in fact a scientific
breakthrough. This is because when a society's leading institutions accept the
beliefs, practices, and implications of a scientific model, a form of
scientific knowledge has been "created."
By criticizing
the existing attempts at "objective" measurement in psychiatry, I do
not mean to imply that these can be sufficiently refined to the point that they
offer a very valid picture. Indeed, my point is that psychiatry is approaching
the problem incorrectly by examining patients and their symptoms as discrete
phenomena without context. More so than other medical fields, psychiatry faces
a large gap between signs noticed by the doctor and symptoms reported by the
patient. To a large degree, the attribution of mental illness is made not on
the basis of characteristics of the patient in isolation, but on the
interaction between patient and provider (Rosenberg, 1984). Given what we know
of the disparity between medical and lay perspectives of illness, and given the
many communication problems in medical interaction, we would expect psychiatry
to be particularly prone to attaining distorted information. Thus,
methodological and measurement refinements will not .be likely to increase the
validity of psychiatric diagnosis. We can understand this better by examining
professional practice styles and psychiatry's social biases.
Professional Practice Styles
Not only is validation generally lacking, but when
researchers study validity the results are startling - validity is very low.
For a good example, let us examine the well-known data on the diagnostic
differences between the United States and the United Kingdom (Kendell, Cooper,
Gourlay, Copeland, Sharpe, and Gurland, 1971). Professionals were surprised to
learn that depression occurred far more often in the United Kingdom than in the
United States, and that schizophrenia occurred more frequently in the United
States than in the United Kingdom. In researching this problem, it was found
that the differences were due to practice styles and their underlying belief
systems. American practitioners were simply more likely to read certain
psychotic sym~ toms as signs of schizophrenia when they should have done
otherwise. DSM-III leaders point to their diagnostic project as a way to avoid
such biases (and hence to improve validity), through the use of clear
checklists and decision-trees. Yet Lipton and Simon (1985) restudied the same
hospital (Manhattan State) years later, examining patient charts, and found the
same level of erroneous diagnosis. In particular, clinicians picked up on a
single symptom (i.e., hallucinations) which is often associated with
schizophrenia, yet failed to examine corroborating symptoms. In fact,
hallucinations are seen in affective disorders as well, and more details are
required to make the differential diagnosis.
In other research, Rubinson, Asnis, and Friedman
(1988) surveyed mental health professionals and found serious misconceptions
about the diagnosis of major depression. The most common errors were erroneous
beliefs that this diagnosis required vegetative signs and a distinct quality of
mood, and that it could not be made if the condition was chronic. Respondents
answered incorrectly on these items 48%, 41%, and 37%, respectively.
There are not enough such studies - largely because
they are threatening, or at least perceived as of doubtful value - so we cannot
tell how common such errors are. But there is good reason to believe that
idiosyncratic use of DSM is widespread. My own field work in the psychiatric
walk-in clinic of a freestanding community mental health centre provides ample
evidence that clinicians resisted official diagnostic classification in order
to make their own work easier, to help patients, and to criticize the official
nomenclature and its underlying theory (Brown, 1987). The staff used humour and
sarcasm, and invented alternative diagnoses. They minimized and normalized
certain behaviours by giving mild diagnoses to protect people from employers
and others. They evaded formal diagnosis when possible, in order to cover their
own potential errors or to protect patients from outside agencies. Clinicians
also downplayed formal, accurate diagnosis when patients came from
non-psychiatric agencies (homeless shelters, welfare department, prison
pre-release) since they did not want to be doing the "dirty work" for
those agencies (Brown, 1989).
In examining more closely one component of the
diagnostic process, the Mental Status Exam (MSE), I found other curious
features. The MSE was employed in a highly variable manner in patient
interviews and discussions with supervisors, and this variation was not
consistent with research, teaching, and theoretical models of the MSE. In
addition, clinicians and patients often found the MSE to be awkward and
embarrassing. As a result there was much humour, as well as clinician
disclaimers (e.g., "Some of these questions may sound silly") [Brown
and Drugovich, 1989].
Arising from these observations, it makes sense to
think of diagnoses as involving both diagnostic
technique and diagnostic work.
Diagnostic technique involves the formalization of classification, including
the specific tasks, techniques, interviews, and chart recording necessary to
make the formalized classification. These elements are mostly discrete,
measurable phenomena which can be taught in specific training programs.
However, the discrete and measurable aspects of these elements are only
potential, and their actual practice varies greatly across clinicians and
institutions.
Diagnostic work
consists of the process by which clinicians concretely proceed with their
evaluation and therapeutic tasks. Many clinicians - especially young ones in
training - employ short-cuts and individual practice styles. This stems in part
from their awareness that their senior colleagues do not completely accept the
given standardization and formalization. Most clinicians have a basic distrust
of the attempt to force fit scientifically repeatable measurements into a
framework which is much too "soft" for such measurement. The use of
short-cuts and individual styles also comes from a desire to feel more
"experienced," like the elder practitioners. Diagnostic work is thus embedded
in routine work, and clinicians' desire to be more advanced makes them less
accepting of the rigors of routine "scut-work" of diagnostic
technique.
Looking at surveys of psychiatrists' opinions on
DSM-III, we see that even those who agreed that DSM contributed positively to
psychiatric training and practice nevertheless believed that it emphasized
signs and symptoms at the expense "of overall understanding. In one survey
(Kutchins and Kirk, 1988), 35% of psychiatrists sampled said they would stop
using DSM if not required to use it. Clinical psychologists are more critical;
90% said their chief application was for insurance purposes (Kutchins and Kirk,
1988). A survey of social workers found that 81% saw DSM as very important for
insurance purposes. Their top four categories of usefulness - insurance,
agency, Medicaid, and legal requirements - all had nothing intrinsically to do
with clinical practice (Kutchins and Kirk, 1988). Another survey found that
psychologists prefer social-interpersonal, nondiagnostic, and behavioural
analysis rather than DSM. Nearly one-half rejected the notion that a universal
nosology was valuable (Smith and Kraft, 1983).
We see, then, a significant ambivalence in that
clinicians both laud and criticize the official nomenclature. This stems from
the diverse social functions and mixed agendas of diagnosis. Mental health
institutions, government agencies, clinicians, professional groups, and third
party payers all have different needs for the diagnostic project. Generally
these needs are incompatible, and prone to generate conflict.
Professional practice styles regarding diagnosis are
not necessarily helpful to patients. Some of the above examples about clinician
avoidance of DSM classifications - such as aiding reimbursement or defending
against stigma and bias - are in the patient's interest. Yet much diagnostic
behaviour is part and parcel of traditional professionalism. This involves
professionals' social biases, professional dominance in the mental health
field, and control over the clinical interaction.
Professionals' Social Biases
Neo-Kraepelinians and their allies believe that past
biases were due to lack of objective criteria, and thus new "objective
diagnostic criteria" will eradicate the potential for biases (Maxmen,
1985, p. 45). This grand claim is evidence of a striking problematic which
drives the biopsychiatric nosologists - employing a technical means to obtain a
social end. The situation is impossible on two counts. First, as I have already
pointed out, professional practice styles vary across providers and
institutions - even on the ostensibly less value-laden matter of DSM
classifications of schizophrenia versus affective disorder. Post-DSM-III
studies have shown that misdiagnosis remains common. Clinicians often simply do
not follow the codified diagnostic schema, and even when they attempt to do so,
they make many errors. In addition, ongoing struggles between biopsychiatric,
psychoanalytic, behaviourist, and community approaches lead clinicians to come
up with varying diagnoses.
Second, race, sex, and class bias - which have long
been central features of psychiatric diagnosis -are much more value-laden, and
will undoubtedly be even harder to eradicate with technical classification.
These biases are part of the overall culture, and invariably will show up in
major social institutions. This is especially the case in the mental health
field, since it has so much latitude for interpretation.
Sexism in diagnosis has been shown to reflect
continual social attitudes, as well as historically changing patterns (Chesler,
1972; Smith and David, 1975). Continual social attitudes are usually seen in
sex differences in definitions of mental health and illness. In Broverman,
Broverman, Clarkson, Rosenkrantz, and Vogel's (1970), classic study, mental
health professionals responded to an open-ended question on the nature of
mental health for men, women, and humans in general. The mentally healthy woman
was defined by her similarity to overall stereotypes of female passivity; the
mentally healthy man by his similarity to acceptable male dominance; the human
in general was the same as the man.
It is in the historically changing patterns that we
observe drastic evidence of diagnostic sexism. I have already mentioned
Lunbeck's (1987) analysis of female psychopathy. In the late 19th century,
neurasthenia was widely abused as a disease category designed to keep middle
and upper class women from active participation in social life. Hysteria has
been another widely disputed diagnosis, now discredited, although many
observers believe that the "borderline" diagnosis today serves some
of the same functions.
Researchers continue to find differentials in
diagnosis by sex. Women are more likely to be diagnosed with depression,
phobias, and histrionic personality disorders, while men are more disposed to
paranoid personality disorders and antisocial personality disorders. It is
unclear to what extent these are real differences attributable to social
factors, the result of professional bias, or a combination of both. What is
clear is that these differences provoke considerable criticism of official
diagnostic approaches, and demand our attention.
Racism in diagnosis has also been widely studied. As
with sexism, we can look at both continual ideology and historically specific
diagnoses. Beginning in slavery, racism led psychiatrists to conceptualise
blacks as belonging to a separate race which was inferior in neurological,
physiological, and emotional capacity. In the 19th and early 20th centuries
such eminent mental health professionals as G. Stanley Hall, William McDougall,
and William Alanson White pursued this "scientific racism" which
viewed blacks as a race still in a childlike social development (Thomas and
Sillen, 1972, pp. 1-22).
In terms of specific diagnostic practices, perhaps
the best known early epidemiological example is the exaggeration of black
insanity according to the 1840 census. This data, reported as true in the
American Journal of Insanity, claimed that blacks had higher rates of madness
in free states - as high as one in 14. The data were clearly fabricated, since
insane blacks were reported in counties where no blacks at all lived. Yet the
data were widely used for such significant political action as President John
Calhoun's 1844 extension of slavery to Texas. Despite clear disproof of this
data, psychiatrists in the Reconstruction era continued to cite it as evidence
of the beneficial aspects of slavery (Thomas and Sillen, 1972, pp. 16-20).
From the 19th century well into the 20th, psychiatry
maintained that blacks were rarely depressed. The explanations usually cantered
around the idea of a happy-go-lucky personality or the notion that blacks have
less to lose in terms of prestige, esteem, possessions, and relationships
(Thomas and Sillen, 1972, p. 128-129). Higher black rates of schizophrenia and
paranoid personality disorders, combined with lower black rates of affective
disorders, were often explained in terms of innate racial differences. Critics
of traditional diagnosis have argued that the prevailing diagnostic categories
are largely a result of professional bias. As with sex biases, there is
undoubtedly a combination of bias and real difference.
To the extent that differentials are caused by
professional ideology, sex and race biases have not been altered in the
post-DSM-III era. Loring and Powell (1988) were interested in whether sex and
race of psychiatrist and client affected diagnosis. They used an analogue study
providing two real cases, and varying four categories of race and sex and a
fifth category of no information. Loring and Powell found that psychiatrists
were more likely to concur on the diagnosis of case studies when no information
on the client's race and sex was available. When such information was
available, psychiatrists tended to come up with the correct diagnosis when the
client's race and sex were the same as their own. Male psychiatrists were more
likely to find depression in women clients; women were unlikely to apply that
category at all. Black psychiatrists gave white males the least serious
diagnoses. All psychiatrists tended to give blacks the more serious diagnoses.
These findings suggest that people view more seriously the abnormality or
rule-breaking of those who are different from them. In a similar vein, Rosenfield
(1982) found that people were more likely to be committed to mental hospitals
for behaviours incongruent with their sex roles. From evidence so far, then,
DSM-III has not succeeded in its promise to eradicate diagnostic bias.
Let me offer one conceptual caution. That there are
diagnostic biases does not, however, mitigate the fact that there may well be
class, sex, and race differences in actual mental health status. In particular,
Hollingshead and Redlich (1958) showed that the class differences in mental
illness are to some extent "real," and attributable to varying
stresses and living conditions in the social world. Likewise, women may have
higher rates of depression as a result of their social roles which lead them to
be more attuned to emotional life. And blacks may have higher rates of
antisocial behaviour due to living in a world hostile to them. A culturally
sensitive mental health system would have to deal both with social
differentials in diagnosis and diagnostic bias. Further, a research effort in
the sociology of diagnosis faces a major challenge in partialling out these two
phenomena.
Professional Dominance
The ascendancy of the diagnostic project reflects
the elite stature of research over clinical practice. Developments within and
without the mental health professions have combined to make research on
diagnostic categories a valued endeavour. Diagnostic researchers also see
themselves as "correcting" the errors of clinical impressionism. This
is related to psychiatric defensiveness against the growth of non-medical
mental health professions. A strict diagnostic schema, particularly one seeking
to incorporate medical evidence, allows psychiatrists to reassert their
dominance over the other professions. Diagnosis has, of course, previously been
affected by the degree of professional power. Temerlin's (1968) famous
experiment showed how clinicians were prone to follow the suggestion effects of
experts. Psychiatrists' suggestions were most likely to be followed, leading to
a more or less severe diagnosis depending upon the expert's overt cues.
This is but one example of the certainty which
psychiatry holds up to safeguard its professional position. We see another case
of unwarranted certainty in Rosenhan's (1973) oft-cited study, which showed
that psychiatrists diagnosed and admitted to hospitals healthy
"pseudopatients" who presented themselves with no other evidence than
that they heard voices.
This certitude is planted in young psychiatric
residents during the professional socialization of the training process. Blum
and Rosenberg (1968) concluded from their study of residents that journeymen
held apprentices to a higher standard of purity than would later be necessary.
The purpose was to convince the residents that there is a clear set of skills
which must be mastered in order to progress. Light (1980) also observed
resident training, and found that diagnostic instruction was a central part of
overall socialization which sought to provide certainty to a disunified
profession which holds multiple needs and goals.
Control of the Clinical Interaction
The same professional desire for certainty which
permeates professional hierarchies also dominates the clinical encounter.
DSM-based diagnosis represents a power-linguistic approach to categorization,
in which patient subjectivity is sacrificed to clinical objectivity. As Kovel
(1988) points out, DSM allows for an "objectifying gaze" rather than
an intersubjective dialogue. Although mental disorders are parts of a system of
social relations, DSM makes diagnosis in the abstract by separating persons
from their social world. At the same time, relying on diagnosis provides
detachment. Detachment is taught as a positive form of achieving objective
understanding, and is also a desired goal for clinicians who feel overburdened
by their work.
Although diagnosis is so crucial to the official
approach to mental illness, it is treated in a curiously secretive fashion.
Psychiatrists are somewhat reluctant to inform patients and families of the
diagnosis, especially for schizophrenia. A survey of 221 psychiatrists (Green
and Gantt, 1987) found that 75% would always tell the patient of
manic-depressive illness, 73% of unipolar depression, and 31% of schizophrenia.
If the category "usually inform" is added, the figure is 91% for the
two affective disorders and 58% for schizophrenia. Among the clinicians I
studied, two-thirds would share the diagnosis with the patient, but only 5%
would bring it up on their own. This secrecy and aversion to disclosure clearly
cements professional control of the interaction.
Apart from any of the other constraints I have
already addressed, the status and knowledge differentials between patient and
professional are enough to produce disparate viewpoints among doctors and
patients concerning the meaningfulness of certain data and how it should be
used. Even if there is a generally consensual approach between client and
professional, the process of decoding and interpreting information is dynamic
and interactive. Certain bits of information are sought or offered, leading to
decisions to ask for other bits. Opinions, attitudes, emotions, and styles are
in play at each step of this process, for the diagnosis carries with it a large
number of implications: future treatment, future limitations, reimbursement,
stigma, potential reconstruction of identity as a chronic patient. Further, the
process by which the diagnosis is arrived at contains the kernel - or even the
template - of the continuing therapeutic relationship in terms of authority relations,
mutual participation, comfortableness, directedness, and satisfaction. As
Glaser and Strauss (1965, p. 18) argue, "From a sociological perspective,
the important thing about any diagnosis, whether correctly established or not,
is that it involves questions of definition."
The goals of diagnosis are more important for the
clinician than the patient. The clinician is bound by financial, bureaucratic,
and professional pressures which demand official diagnosis. As well, the
clinician wishes the certainty and control which is obtainable from naming the
problem. To some degree, the patient also wants the control which comes with
the name. A diagnosis seems to remove the mystery of the problem by giving it a
name upon which hinge future considerations of treatment, cure, personal and
social implication of the problem, and social acceptance of one's diminished
abilities. Yet for patients, diagnosis is less important than a broad
understanding of their problems and what can be done for them.
Patients, like clinicians, use cues as a way of
recognizing the disorder. Three types of cues - symptomatological, behavioural,
and communicative - disturb the taken-for-granted sense of order. This is to
some degree complementary to doctors' diagnostic actions: for both parties, the
naming of a diagnosis helps people in "making sense of problematic
experience," since "something unknown, potentially dangerous, and
worrying becomes assimilated into a familiar order" (Locker, 1981, pp.
47-50).
Twenty years ago, Levinson, Merrifield, and Berg
(1967) examined the same clinic where 1 conducted research. They found that an
ideal, objective "diagnostic model" was in fact less common than a
"suitability model" that selected psychotherapy clients. Despite changes
in the mandate of the clinic, twenty years later suitability remains a powerful
characteristic of patient selection. Suitable candidates typically are verbal
and articulate middle-class persons who staff view as "healthy
neurotics." Thus the "objective" gaze of DSM is short-circuited
by a more subjective approach which carries its own biases.
Thus what purports to be a diagnostic process is in
fact a disposition process, since the same diagnosis can lead to different
dispositions. Adjustment reactions of various types and dysthymic disorder
(what pre-DSM-III nomenclature called "depressive neurosis") are
often diagnosed for persons who are not very troubled, functioning well on
their own, and who are able to discuss and interpret their problems. But a
middle-class college or graduate student is more likely than a working-class
person or welfare recipient to be offered therapy, despite similarities in
diagnosis.
One woman in her early 20s, mother of 5- and
8-year-old children, came to the clinic 1 studied. An AFDC (welfare) recipient
with a clerical work background, she felt in a rut with trying to find work.
She felt she was getting little empathy and support form others though she put
herself out a lot for people. One such person struck her and broke several
vertebrae. She also retained many unexamined emotions about her mother being
raped in their house eight years ago. This patient was able to present herself
quite clearly and was articulate about many things in her history. She took an
active role in asking sensible questions about the clinic, such as whether she
would see the same clinician each time and whether she would have to repeat her
story over again. She engaged very much with the clinician, and responded fully
to questions. But in crucial ways, her vocabulary differed from the staff's.
This client came looking for help, but was not savvy enough to say she was
looking for "therapy"; this was one example of the limitations of her
"treatment vocabulary." Similarly, her "vocabulary of discomfort"
(Bart, 1968) was not congruent with the clinicians' vocabulary. She said too
much about concrete life experiences, rather than making abstract connections.
She also said she was "lonely," but not "depressed'. Staff in
fact took this literally, and believed the woman needed what they term
"supportive therapy," i.e., periodic contact with a social worker who
would encourage her to make certain social contacts. Interestingly, one of
those recommended contacts would be her minister, to whom she had spoken about
her problems, and who she claimed had been of minimal help. One other
noncongruent discomfort vocabulary item was that she expressed guilt about her
mother's rape, but did not use the term, "guilt." Compared to most
working class women who came to the clinic, particularly those who like her had
been teen mothers, this patient was extremely articulate and insightful. One
might think that she would be an interesting challenge to take on as a
psychotherapy candidate. But a query to the clinician about this elicited no
answer.
From the standpoint of Balint's (1957) concept of
"organizing" the illness, the psychiatrist in this case did not
interpret the client's problems broadly enough so as to "organize" it
as requiring therapy. If anything, the intake clinician merely listened, without
interpreting. In other cases, clinicians can provide excessive interpretation
which minimizes the client's problems by recasting them as inner conflicts
without any reference to social surroundings. An excellent analysis is found in
Scheff's (1968) analysis of a training session, found both on a phonograph
recording and in a written transcript. A woman presented herself for therapy
because her alcoholic husband abused her verbally and prevented her from
working outside the home. The psychiatrist was hostile to her, and reframed her
problem as a personal shortcoming. Only when she accepted this new
"organized" illness did he offer her treatment.
Thus either with the objective DSM gaze or the
subjective suitability gaze, diagnostic reasoning is the central form by which
many clients judge their patients and reframe their problems and needs.
Diagnosis, then, serves a gatekeeping function, in which individual practice
styles and local cultures of appropriate care are manifested. I next turn to
some large social gatekeeping functions.
Diagnosis as an Arena of Struggle
A sociology of diagnosis can also point to the
importance of diagnosis as an arena of struggle. Diagnosis is often the
location in the psychiatric world where both lay and professional critics fight
over the roles and functions of diagnoses. These struggles are ample proof that
scientific discoveries are not the result of an ongoing "march of
science" as much as of political battles.
Bayer's (1981) study of the psychiatric profession's
response to homosexuality presents a classic example of diagnosis as an arena
of struggle. Without any change in the internal "science" of
psychiatry, the American Psychiatric Association dropped homosexuality as a
mental disorder, based on widespread opposition from the gay rights movement
and from people sympathetic to that movement's demands concerning diagnosis.
Feminists, too, have taken up struggles in this arena. Proposed DSM-III-R
revision discussions included "paraphilic coercive disorder" which
many felt would let child sexual abusers off the hook by calling them mentally
ill rather than criminal. Women's groups fought this, and the proposed
diagnosis was dropped. Feminist pressure also led the AP A to change
"masochistic personality disorder" to "self-defeating
personality disorder" (this labels the victim of wife battering, rather
than the batterer), and "premenstrual syndrome" was changed to
"periluteal phase dysphoric disorder" (Kaplan, 1983).
Diagnostic struggles are sometimes directed toward
the inclusion of new categories. Post-traumatic stress disorder, for example,
was added to DSM-III through the concerted action of Vietnam Veterans Against
the War and sympathetic mental health professionals. Supporters faced
opposition from the Veterans' Administration and the American Psychiatric
Association, and were able to overcome this by successful mobilization of
mental health professionals, veterans groups, and by media attention (Scott,
1989).
Conclusion: The Ahistorical Nature of
Diagnosis
Biopsychiatric neo-Kraepelinians lay claim to a
project far grander than merely a comprehensive, objective diagnostic schema.
Their goal is to lead the transformation of the mental health system. This is
largely defined negatively - opposing the labelling/societal reaction
perspective and the anti-institutionalist attitudes that have played such a
large role. These new leaders seek to strip psychiatry of any social context.
They wish to place psychiatry in a technocratic framework rather than an
interpretive, humanistic one. But even if the professional project goes beyond
diagnosis, the diagnostic project is at the core of a larger goal. One reason
for the centrality of diagnosis is that diagnosis plays a coordinating role in
laying out the terms of medico-psychiatric discourse. Professional leaders have
taken the diagnostic terminology of DSM and reified it into the essential
statement and rationale of biopsychiatry. Another reason is that the
significant social powers to whom organized psychiatry asks for support view
the diagnostic schema as the proper codification of psychiatry. Third-party
payers, both private and governmental, as well as state and federal bureaucrats
who run mental health agencies, have established a diagnostic determinism.
Quite literally, the mental health of a client only becomes
"official" when the proper DSM code is affixed.
Psychiatry is ahistorical in many ways, especially
in ignoring the history of its own traditions and errors. It is striking that
there has been so little criticism of DSM. As we would expect, more criticism
comes from social workers and psychologists, since they lose out to
psychiatry's professional dominance. Within psychiatry there is very little
criticism. Criticism is stifled by a general impression, fostered by DSM leaders,
that the "old way" was merely a simplistic psychoanalysis or a
radical antipsychiatry. DSM proponents argue that their system avoids the
social expansionism of previous times. Earlier expansionism was marked during
the rich funding of the 1950s and 1960s. In that period, many large-scale
epidemiological studies employed diagnosis as a major vehicle for their work,
which resulted in greater social, professional, and economic attention to
mental illness. Yet there is a new expansionism today, again in the
self-interest of psychiatry. We see expansionism now in general research areas
of rich funding and prestige, such as AIDS, aging, and homelessness. Also, some
new diagnoses have the same expansionist quality, e.g., "post-luteal phase
disorder," "post-traumatic stress disorder."
Psychiatry's ahistoricity is illuminated by these
new categories. Despite the inclusion of new categories which have clear social
contexts, psychiatry ignores its own history and the history of society. In
particular, psychiatry does not ask why certain diagnostic categories appear
and disappear over time. Quite simply, psychiatry cannot explain why hysteria
has declined, or why narcissistic problems and co-dependency have grown. These
are essentially socio-political phenomena which are not comprehensible within
the medical framework of diagnosis. Because psychiatry cannot comprehend
diagnosis as a socio-political phenomenon, alterations to the existing
traditional diagnosis models will not lead to a greater understanding of mental
disorder. For that reason, a sociology of diagnosis should be further developed
in order to offer a more comprehensive perspective.
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(1) This was the same prescription given to
Charlotte Perkins Oilman in the last decade of the 19th century, and in fact we
usually associate this with the psychiatric approach to upper class women.
(2) Commitment, however, requires varying degrees of
behavioural characteristics, such as actual or imminent violence to self or
others, or in more broad-based statutes, inability to care for oneself. These
characteristics cannot be read directly from diagnoses, although some diagnoses
imply a greater likelihood of those characteristics.